Saturday, March 22, 2014

We Take Care Of Our Own

Word has it another storm is on the way.  Just when you think it's safe to leave your house and go to PT to rehab your busted wrist....  Although I'm bumbling through many of life's required tasks with my left hand, I'm still painfully slow (painful being the operative word).  I had the giant pin removed from the hardware that was recently installed to rebuild my wrist, the hard cast is off, and I've started PT.  My fingers are pretty useless and oh so painful, but I'm determined to work hard to resume a normal two-handed life soon.

Thanks to Mary, I made it up to Boston for the Adenoid Cystic Carcinoma Research Foundation (ACCRF) events.   The trip was exhausting, but I'm so glad I was able to meet other patients, the founders and organizers of the Foundation and the volunteers of their sister organization, ACC Organization International (ACCOI).  We shared stories, broke bread and learned about the latest research in the pipeline for a systemic treatment to stop this monster once and for all.  Sound like an unrealistic reach?  I might think so too.  But with what we know about what causes and drives ACC, and with all the scientists who are now working on research models, there's a lot of hope.

Hope is powerful.  So is having people with whom you can share that hope.  Cancer's a lonely journey; all serious illnesses are.  When it's a rare disease, the isolation can be severe.  Meeting people who speak my language is like gaining an instant family.  Or, as Bruce says,
Wherever this flag’s flown
We take care of our own.
Again, to all of you who donated to the fundraiser, my sincere thanks.


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