Not So Happy Events
1. Around the time of my last post, I pulled my sacroiliac (SI) joint in my left hip. It was very painful to walk, and since I was pretty weak to begin with, it really slowed me down.
2. A couple of weeks ago I got a cold, which started to move into a sinus infection.
3. I started having stomach trouble again. No appetite, a wacky sense of taste, and nausea all the time. My doctor was going to order an endoscopy to see what was going on, but last week, when my skin became blotchy, he knew that my stomach issues and the new rash signaled a return of graft vs. host disease, or GVDH. Instead of finally getting completely off the steroids, I was put back on a full dose of Prednisone to treat the third episode of GVHD. At this stage in the game, after Day 100, GVHD is called "chronic," instead of "acute." The weaning process for Prednisone with chronic GVHD is slower (just my luck). My symptoms have gotten a little better, but it's sloooooow going. In the meantime, I can only hope that the CMV virus doesn't rear its ugly head again.
4. One of the side effects from the anti-rejection medication, called Prograf, is tremors. I've been shaking since the transplant, but for some reason, the tremors have become ridiculous. I can't write, typing is a challenge, and watching me eat soup or salad is every bit as humorous as any of America's Funniest Home Videos. I probably won't stop shaking till I get off both the Prograf and the Prednisone, which may take 2-3 months.
Very Happy Events
1. My SI joint is healed, thanks to my chiropractor and physical therapist.
2. My cold/sinus infection is gone.
3. I've had several negative CMV test results, so that is now officially under control.
4. I made it to 95 pounds! My appetite is improving and I'm trying to eat like crazy.
5. I bought a beautiful pre-certified 2008 dark blue Audi A4! Since I had to turn in my leased Toyota, it was time to find another car. The timing was awful, as all 4 of the Not So Happy Events above occurred simultaneously. But it all worked out. I could have found something less flashy, something that didn't gut the remainder of my savings after paying an obscene amount for Zofia's caregiver services. Here's my reasoning: Assuming I die of old age, as most people assume, I'll have plenty of time to replenish my savings while driving a cool car. If I die sooner (let's not forget that any one of us could get hit by a bus at any time), why not drive a cool car? So here it is: