I had a pretty busy week, starting on Wednesday, September 10th. I took the train to Pittsburgh for a working vacation. On Thursday, Mary and I drove around the city looking at potential apartments and neighborhoods for my relocation next Spring. That was very productive. On Friday, I went for a consult with a potential local oncologist whom I hoped would meet my rather rigorous standards. He didn't; it was a big waste of time that could have been avoided had he actually read the letter I wrote him about my needs. The day was redeemed when we spent way too long at the T-Mobile store upgrading my phone. I'm pretty happy with my new toy, thanks to Sarah's savvy assistance. Everyone needs a 16 year old for such life altering events.
Saturday was an Adenoid Cystic Carcinoma Organization International (ACCOI) patient meeting, where five ACC survivors and their family members met over lunch. It was an amazing group of incredible fighters. We shared our very diverse stories, treatments, doctor recommendations and tips for navigating the treacherous waters of an unpredictable and brutal cancer. There was humor, hope and priceless information, not to mention newly made friendships.